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Showing posts from May, 2017

World IBD Day 2017

Tomorrow is World IBD Day... it is the 5th that I have celebrated. Tomorrow I will be wearing purple in honour of the day. Prior to 2012 I had no idea about World IBD Day indeed I didn't know what an IBD was and I certain didn't know what an ostomy was! In honour of my 5th World IBD Day here are 5 thoughts to share... 1) Having an IBD IS HORRIBLE. It is debilitating, life changing, life limiting and exhausting. At my worst I had very little life. I couldn't go out with my family, I couldn't do things with my daughter or my husband. 2) Going to the toilet up to 30 or 40 times a day IS NOT normal! It is not the same as having a dodgy curry! It is exhausting. And time consuming! 3) The medical profession can be both brilliant ... they saved my life...but also awful at diagnosing IBD. It is much easier to diagnose IBS than IBD. Being told for years that I had IBS probably nearly killed me. 4) There is no cure for IBD... research is finding answers slowly, but it is